Thursday, March 6, 2008

It's 3 AM

No, I'm not going to break into the Matchbox 20 song "3AM", but the time stamp is appropriate for how things have been so far today.

I was in Aidan's room maintaining my vigil when I fell asleep just after midnight (and listening to "He's My Son" on my cell phone and bawling my eyes out). At 2AM, the nurse had come in to start her follow-up on Aidan when I heard one of the unmistakeable tones coming from the many machines around him. I asked the nurse if she did something and she said she had put mouthwash in his mouth. The pain from this (Aidan has bitten his tongue a few times) set him off into a storm. She spent the next hour trying to get him to calm down and was overall unsuccessful. Once again, his pulse peaked at 200 and respirations were consistently over 100.

About 45 minutes later, I went up to his bed and attempted to calm him by rubbing his leg and talking as softly as possible to him. That didn't help matters much. I told the nurse I was going back to my room; I couldn't stand seeing him like that. I tried to sleep, but it was more in fits and starts until the nurse called and told me he had settled down. At that point, I finally got to sleep.

Fast forward to this morning. I went to see Aidan when I got towels so I could take a shower and he was, once again, having a storm. This time, the nurse was telling an EEG Tech what meds Aidan was on (He'd make most rock stars green with envy when you start counting the number of drugs he's on ... wow!). She proceeded to tell me that he had been in this storm since she came on at 6AM. At this time, they are preparing an EEG while it is happening to find out if the storms have actually turned into seizures. they also have decided to put Aidan back on the Versed, since multiple boluses of Fentanyl and Ativan really haven't had much of an effect on him.

Pray that these storms are still storms and not seizures. If they are seizures, it will be a major setback.

Now that I think about it, I guess Rob Thomas actually did write an appropriate lyric in that hit song:

well I can't help but be scared of it all sometimes

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