Monday, March 24, 2008

sleeping angel

Our boy is resting peacefully. It's so comforting to see him sleeping soundly. I have been reading about Abby, a little girl who nearly drowned 4 years ago ( and I came across the blog site for a little boy who nearly drowned last year ( I started reading his page and immediately felt very connected to this little boy's story. I'm still trying to read all of the posts but when I am finished I plan to email his parents and tell them about Aidan. I think having other parents who have been where we are will help. It gives me hope that Aidan is going to be just fine. Both of these mothers have a strong faith in God and they have given me so much inspiration. Please, if you have the time read these blogs and say a prayer for them as well. I got the inspiration to start this page because of Caleb's page.

While reading the entries about Caleb, I saw that he is/was on valium for spastic muscles and I immediately said to myself, "I'm going to talk to Dr. Black about that when I get to the hospital." Right after I thought that, Russell called me to tell me that Aidan had been started on valium around noon. It seems to be doing very well for him because he hasn't had a storming episode all evening. He's gotten upset, but he's been able to calm down and his arms and legs are not nearly as rigid as they have been. The occupational therapist was actually able to work with him today. I'm so thankful for that.

God continues to answer our prayers. I just pray that the storms continue to calm and that our Aidan can shine through. We got a little glimpse of the life in his eyes this evening. He was calm and looking around at everything. He even looked AT me. He's also been coughing, which we are so happy about. That means we're just another step closer to him being able to have the trach removed at some point in the future. (we've been afraid he'd have to have it permanently) .

I just wanted to share this good news. Thank you so much for your continued prayers. I'm so grateful to everyone for their love and support.


Kristina said...

I'm glad to hear the valium is working so well. Does this mean he may be able to come off some of the other meds?

Russ and Erin said...

The other pediatrician came on duty today and he said that Aidan is also still on the Ativan in addition to the Valium and he said he will try to get Aidan off the Ativan and replace it with the Valium since that seems to be helping more. As for the other meds, I'm not really sure what they are going to keep him on. I'm certain that he'll stay on the Clonidine and the antioxidants, but as for the other stuff, I'm not sure. We'll be having a family meeting Thursday most likely with the doctors here and those at the rehab so we'll go over all of this with them.