Wednesday, May 28, 2008
Dr appointment and MRI
Aidan had a follow-up appointment with the pediatric pulmonologist yesterday. To quote him, Aidan "sounds beautiful!" His lungs are really clear and and he sounds good. We have a broncoscopy scheduled for June 11th. Aidan will be put under mild anesthesia and they will pass a scope through his nose down past the trachea and into his lungs. While he is under the doctor is planning to take Aidan's trach tube out to see how he responds and to make sure his trachea doesn't collapse. This is just one step closer to getting the trach tube out. When we get through this and everything looks good, we'll meet with an ENT (ear, nose, throat dr.) to get Aidan fitted for the passy-muir valve that will allow him to breathe in through the trach tube but he will have to force the air out of his nose and mouth. So everything is looking great in that area. I'm excited to think that Aidan will be able to have his trach removed by the end of the summer if everything goes well.
Today was the MRI. Everything went well except they had to stick him 5 times to get an IV started. He looked like a little pin-cushion. We probably won't have any results back on it until tomorrow or Friday. He's slept for a good part of the day, so I'm hoping he'll rest tonight.
Sunday night will be our trial night alone with Aidan. So far since he's been home we've had a night nurse, but with our hours dropping we have to rearrange the schedule. I wanted to try not having a nurse for an evening to see if I feel comfortable not having someone sitting with him at night. I'll have the baby monitor right beside him so I can hear if he needs to be suctioned or anything like that, but I'm a paranoid mommy. I still go in to make sure he's breathing. I was bad before the accident, but there is nothing like seeing your child lifeless and not breathing to make you fear he'll just stop breathing again. Irrational, I know, considering how well he's doing, but hey, I'm neurotic and a control freak! :)
On another good note, Aidan hasn't been having as many "seizures" as he had been having. In fact I don't think I've seen him have any at all today. The nurse said that he had a few last night all provoked by her giving his routine cares (meds, etc.) Other than that, he's done pretty well.
Please say a prayer that we get some good news with the results of his MRI. I'm hoping for a miracle and the report to show that Aidan's brain is healing. I just need to know that all of our efforts are paying off. I can see the little changes in him, but it would be great to see them on the MRI films.
at 10:13 PM