Monday, July 28, 2008

a pretty good weekend

This weekend was pretty good. Aidan is doing well. I think he's getting over the ear infection. The physical therapist brought a loaner stander for us to use on Friday. I was so excited about getting him in it. We put him in it for 30 minutes and he did really, really well. He actually started falling asleep. I got him standing in it up to about 45 minutes on Sunday.

Saturday, Russell and I went to a concert. We went to the the Avett Brothers. I went to school with them. They play a very interesting mix of bluegrass and rock music. The show was 2 hours away, in Cary. My aunt Bev came up to watch the boys. Aidan's nurse was here part of the time so that helped out some, I hope. She said they both did well. I really enjoyed the concert. It was nice to get away and Russell and I managed not to talk about the kids except for a couple of times (I think).

Sunday was a pretty good day for Aidan. He had a bit of a rough night, so he slept most of the morning, but he was in a good mood most of the afternoon. We put the PMV on him and he wore it about 6 hours or so. He does so well with both the PMV and the cap. All afternoon he was "talking". He kept making different sounds like he was trying to form a word because it wasn't just a single sound like "oh". I love hearing his voice. I can't stand to hear him crying though. It just breaks my heart.

That's about all we did. I have my appointment with the surgeon tomorrow about my hernia, and Aidan goes back to the ENT on Wednesday. Hopefully we'll talk about downsizing his trach then. We'll have to see. I'm hoping that the ear infection and the congestion he's had hasn't put us behind on that progress, since I haven't felt comfortable capping him much during the last week.

Thank you all for the continued support and prayers. Please pray that we have more people register for the golf tournament this week. The deadline is the 1st for registration. We had a group offer to help us with some prizes so there are some really great prizes if people register for the mulligan package. Russell has put all the information on the Golfing for Aidan website.



Anonymous said...

continued prayers. I think of you daily.

Anonymous said...

You were in Cary and didn't come to see me! :( I'm only 20 min. away. We might have missed you since we were just getting back from the beach. Caiden had a blast. Maybe one day you'll be able to take Aidan down for a day and let him feel the breeze and smell the sea. That might get him talking. :) I'm glad he is doing well and I hope you can get well soon yourself. Talk to you soon!

Anonymous said...

P.S. If you are ever in the area again and want to bring Evan to play with Caiden,...feel free! I know they would have fun. :)