Aidan's visit with the ENT went well today. We've scheduled another bronchoscopy to be followed by decannulating (removing the trach), if all goes well. That will be in 3 weeks on August 20th. I'm excited about this, but then again, I'm scared. We'll most likely lose our private duty nursing as a result of the trach being removed, despite the fact that nothing else about Aidan's condition has changed. He's still on a ton of medication and he still has seizures, and he's still got a G-tube. It doesn't make any sense to me at all.
Aidan started back with the hyperbaric treatments this evening after taking a week off because of the ear infection. The ENT looked at his ear today and said it looked great. We've got to work in some of the appointments we've missed and hopefully get him up to where he can tolerate more pressure.
My appointment on Tuesday went okay. I met with the surgeon and they scheduled me for an abdominal/pelvic CT scan for tomorrow morning. After that I'll go back for a follow-up with him and then probably see a plastic surgeon to see about getting the extra skin removed when they repair the hernia. I'll know more once they get the CT results back.
It's been pretty busy the past few days. I'm hoping we get some more people registered for the golf tournament since we have until the 4th to get the registration forms in. We really appreciate everyone's support and all of the fundraising that people have done. We recieved $1200 from the Sons of Confederates for the Poker Run that they had last month. We had some pictures made with the guys last night, so I'll post them once they are emailed to me.
Thank you all for your continued prayers. Without them, I'm not sure where we'd be. I'll leave with another bit of info- Aidan looked at me this afternoon and grinned. I was so surprised that I had to make sure it wasn't a seizure first, but it wasn't. My little boy is coming out of this... I don't know how long it's going to take, but I'm going to fight for him as long as I have to.