Tuesday, September 2, 2008

update

I apologize for not posting the pictures, I'll get those up soon. For some reason Aidan began crying/storming Saturday after we got home. It lasted from about 2pm until just after midnight when I guess he finally got so exhausted he couldn't cry any longer. He woke up Sunday morning in much the same way. We tried everything to calm him, but nothing worked. He acted like he was hurting and we just couldn't figure out what was going on.

Aidan did calm down long enough to go to his hyperbaric appointment Sunday morning, and even slept through the session. On the way home, though, he started crying again. We finally decided to call his doctor and by the time we got a call back he was starting to settle down. He was quiet and slept for almost 5 hours Sunday afternoon. He woke up and it was like someone flipped a switch and he started storming/crying again. We called the doctor back and she came out to the house, this time to see Aidan in the midst of the storm so she could see what was going on.

There wasn't anything obviously wrong with him, so she sent us to the hospital to stay overnight so they could run some tests to rule out any infection or anything like that. Go figure that he would calm down when we got to the hospital and he went to sleep. Had the nurses and other staff not had to mess with him, he would have slept through the night. He only had one brief crying spell about 4am Monday morning and the rest of the time was quiet.

All of the tests came back normal, so we aren't sure what is causing the sudden onset of the crying. To me it looks like he's in pain. The doctor sent us home with something for pain to give him as needed. We have a follow-up appointment with the ENT this afternoon so they can take a look at the trach stoma and make sure it looks okay. We're not sure if maybe that is causing some pain or discomfort for him. It is always covered by a dressing so it should be okay.

Anyway, I don't know that this would be a set-back. Aidan's oxygen sats are really good. They're usually between 98-100%, so as far as not having the trach goes, he's doing great. Who knows what the other is. Maybe it's just a phase. I hope it goes away soon, because I can't bear to listen to him crying when I can't fix what is wrong. Heck, I don't even KNOW what is wrong.

Please pray that whatever is upsetting Aidan or causing his pain is resolved soon. He's been doing so well, I hate to see him like this. It just breaks your heart to hear him cry.

7 comments:

Anonymous said...

Dont worry about putting the pictures up right now! You have your hands full!
I am standing in prayer right now for your little boy and for you. I know you may feel alone, but I am here with you in California. You and Aidan is NEVER far from my mind and prayers. {{hugs}}
Cindy.

Anonymous said...

No apology necessary. Sounds like you have had your hands full.
Have been praying that Aidan will calm down and that there is nothing else going on. I know this has be a strain on you having to watch him cry and nothing you can do. Lifting you in prayer as you go through this tough time. Hopefully there will be a better report tomorrow.

Anonymous said...

I pray Aidan is wrapped in God's comfort and that you and your family will get the rest and peace you need.

Betty said...

So, Happy to hear that the Trach is
now gone, and that his sats are
remaining UP..
I hate to hear that he is crying so
much, I know that wears you down,
but for the most part, the path is
getting brighter, wanted to let you
know we are thinking of you, and praying for each of you.
Please get some rest, and tomorrow
will be better, your faith will see you through.
Hugs
Betty & Brian

Susan Mitchell said...

Wow! I just heard about your little Aidan when I looked in my facebook. I don't get on it that much, but when I did and I saw this about Aidan it just broke my heart for you all. I know this has been a very difficult year for you all. My prayers are with you during this time. Just remember God is there with you through this and he will give you all the strength you need for each day. God knows all things. We don't understand why things happen the way they do, but know that God is in control of it all and there is a reason and one day you will know. But for now just have FAITH that God is there in the midst of it all and he knows your pain. May the Lord Comfort and guide you through this. Aidan has a smile that warms your heart. Love in Christ, Susan Mitchell, Statesville, NC

SugarEd Productions said...

my prayers for his comfort and resolution of this problem. I can only imagine how hard it is for you to see him crying like that and not be able it fix it.

Anonymous said...

Is Aidan feeling better yet?
How are you?
Cindy.