Wednesday, March 4, 2009

Growing up so fast!

Today is Aidan's first full day of preschool. I think he'll do just fine. Last week he went half days and his nurse went with him. The very first day he smiled when they did "circle time" and sang. He's painted by rolling a truck through paint and ridden in a wagon. I think he's going to really enjoy being around other children and being in a different environment.

Last Monday, I got a call from the neurologist about Aidan's MRI and SPECT scan. Aidan has two small hemorrhages in his brain. The larger one is 4-5mm, which is really small. We are trying to figure out what caused the bleeds. As far as we know, there is no family history of bleeding or clotting disorders, and I don't know of anyone who bruises easily in my family. Because Russell is adopted, we don't have a very complete family medical history, so it's hard to say. We know very little based on what his mom knows. Anyway... we went Wednesday and had some blood work done to hopefully find out what is causing the bleeding.

The good news is that aside from the bleeds, Aidan's MRI was stable. There wasn't any additional atrophy or shrinking, so that is good. We're okay with stable. I had hoped for something better- I don't know what, but better.

Aidan is doing so well eating by mouth. He LOVES applesauce, he did before the accident too. He's been eating more at each feeding too. We're up to about 2 ounces on a good day. There have been a couple of occasions that he's eaten more than that, too.

Yesterday was a year since he had the g-tube and trach surgery. We no longer have the trach, and we're working on the g-tube, although Aidan will have it for a while. It's just easier to have it, even if we don't have to use it on a regular basis. That is what we're working toward. The more food he can tolerate by mouth the less we have to use the tube and we can start mixing his meds into his food. The g-tube would just be there for occasions that he couldn't eat or take his meds by mouth.

Yesterday, I found an inflatable parrot for Aidan. It's bright and colorful and once I got it blown up, I gave it to his therapist and she got him to track the bird. It was great! He followed it very well. I rigged it up so that it looks like it's perched on the bar of his swing in his room. It's amazing the things you can find that can be therapy "toys".

Well, that's what is going on here. Sorry for the slack in updating. I'll try to post again soon.
Thank you everyone for the continued support and prayers!

~Erin

1 comment:

Luke's Mom said...

I will be praying that the Dr.'s figure out what is causing the bleeding in Aidan's brain. I'm so glad to hear that he is enjoying Pre-school. Aidan is doing excellent, it may not be as well as you hoped for, but the progress that he has made so far has been wonderful. I realize that is not really what you want right now, you want Aidan walking and talking again, don't lose hope he is making great progress.

I continue to pray for you and your family, I know that the nightmare that you are living is extremely difficult. I hope that it is getting a little bit easier one day at a time.

Love in Christ,
Suzi