Monday, March 23, 2009

today's doctor visit

We met with Aidan's neurologist this morning to go over his last MRI and SPECT as well as the last EEG and the blood work that was done. We looked at the MRI images and compared them to the first ones that Aidan had. There has been little change which is good. The damage that Aidan initially sustained is stablized. We did see the areas where he has had some subdural hemorrhaging. We still aren't sure what caused the bleeds since Aidan hasn't had any visible trauma to his head.

I think the main concern now is to get the seizures under control. Aidan has many, many seizures a day. I can't even keep track of them all. The nurses try and they try to keep a count while he is at school, but there are a lot. We're going up on the Keppra to help control those.

I asked Dr. C if it is possible to get them under control so that he doesn't have them at all and he said that is his goal- to get Aidan to a point where he doesn't have any seizures at all. The Keppra is a "maintenance" drug from the way he described it to us.

Aidan will have another MRI on April 2nd to make sure there is no additional bleeding and to see that the other ones are starting to be reabsorbed. If they look larger or there are more, we will be referred to a different specialist to make sure there is nothing wrong with his blood that would cause this. That's what the blood work was supposed to be for, but he said the specialist would be better suited to do the tests.

Aside from that, the doctor is optimistic. He's always been optimistic. He's willing to try whatever it takes to help Aidan. We couldn't be luckier to have him as Aidan's doctor. He is very pleased at Aidan's progress, which makes me feel much better. Aidan has come such a long way. I just hope he continues to progress and surprise us all.

Thank you all for your prayers and we ask that you continue to pray for Aidan. I'm never going to give up on a miracle recovery, but so many of our prayers have been answered and it hasn't been without your efforts and support along the way.

I'll try to post more soon.
~Erin

2 comments:

Luke's Mom said...

You are blessed to have such a wonderful optimistic Doctor. I will be praying that the seizures will start to diminish and that Aidan won't have anymore brain bleeds.

Suzi Searles

cindy scott day said...

If you haven't found our group so far, you may want to look into us: http://www.chasa.org. (My daughter had a stroke at birth. (@cindyscottday on Twitter/Cindy Scott Day in Indiana on FB).