I know some of you have been wondering why we had been giving Aidan Ambien. This video was shared on our parents of near-drowns group and I thought it would be good to share with everyone.
I hope this helps you all understand why we are trying it. We have to start with a very small dose with Aidan because of his size. Currently we're having issues with insurance to get the entire prescription paid for. They are only paying for 15 days worth of pills at 10mg, which Aidan was at before we had to stop giving it to him. We still have refills available, so I'm going to put him back on it and go back to the smaller dose. We'll see if it does anything.
Aidan has been doing really well. The past few days at school he's been smiling and laughing. Apparently he likes Elmo, because those are the toys that have gotten a response out of him. Yesterday they got out the dancing and tickle-me-elmo and Aidan got so excited about them that his teacher said he did his excited squeal and laughed.
He's been moving his right arm and his legs a lot lately too. Yesterday when the physical therapist was here, he pulled his head back 4 different times. He is making more eye contact and is responding to much more than he had been. When Aidan got upset last night because he has terrible gas pains and cramps, the nurse said it sounded like he was saying "momma". My mom has said she thinks he's saying it too. I've heard what sounds like "momma", but I just figured it was just a sound he was making. I'm not sure he knows what he's saying. It would be nice if he did.
Anyway, we're going to take Aidan and Evan to a horse show at Wings of Eagles ranch in Mt. Pleasant on Saturday. They work with kids who have disabilities and do "hippo-therapy." That's a type of therapy that involves riding horses. It helps with body awareness and trunk control. There are other benefits but I don't feel like quoting research at the moment.
Regarding our raffle fundraisers, I don't think that we are going to continue with them because we've had minimal interest. We've had a few (and I do mean a FEW) people buy tickets, but it isn't worth it to keep trying to do this. We're going to have to figure out another way to raise money to help Aidan. If anyone has any ideas or would like to help out with organizing something, we'd be grateful. Insurance doesn't pay for everything and the additional therapies and supplements that Aidan needs alone are expensive.
I hope that everyone is doing well. We thank you all for the support and prayers and ask that you continue to pray for our family.