Okay, I took a hiatus from blogging for a while. With dealing with Aidan's bouts of tummy aches and crying for days on end, I just didn't feel like sounding like a broken record.
This past Wednesday was Aidan's last day of pre-school for the summer. They had a little luau party for the kids and their families, but unfortunately, we didn't get to stay for it. I had an appointment that afternoon for myself, but our doctor wanted to go ahead and see Aidan since he was still having stomach issues and had been crying for several days again.
When I got him there his little tummy was just all gassed up and he was miserable. The pain comes and goes, so we have to try position changes and burp him through the g-tube. He finally settled down with me cuddling him in my lap. The doctor had me start giving him bean-o at every feeding and we added baclofen to his medications.
Aidan was on much higher doses of baclofen when he was in the hospital right after the accident. It helps with spastic muscles, and in low doses seems to help his stomach cramping and pain. We'll see how long the "calm" lasts this time. I'm hoping permanently, as far as the gas and cramping go. We're still having to deal with the GERD issues as well.
Aidan has an appointment with the GI doctor at the end of the month and I plan on asking him about doing a scope to see if there is any damage or ulcers because of the acid reflux that are also causing pain. We've put off doing the Nissen surgery for a year now, and I was hoping we would never have to do it, but I don't think we'll be able to hold off on it forever. The Nissen is like putting a band at the top of the stomach to restrict the acid from coming back up in the the esophagus. There are good things about it and bad things. The bad thing is that it doesn't "grow" with the child and can cause problems down the road. We'll just have to keep an eye on things and see how Aidan continues to do.
Other than that, not much else is going on with Aidan. He got some new AFO's that work so much better than his old ones. He can tolerate wearing them much, much longer which is so much more beneficial to him. School starts back the 2nd of September. Aidan really seems to enjoy school and being around other children and his teachers. They are all so good with him.
Some additional news... We found out last Tuesday that we're expecting another baby! That is why I was going to the doctor myself on Wed. This was a surprise to say the least, but we're happy if not a little shocked still. It's more and more evident to me that God has other plans in store for us and that I know nothing as far as planning my life. :) As terrified as I am at trying to take care of a newborn and Aidan with his needs and Evan getting into anything and everything, we'll find a way to make it work. It'll just be a circus at our house for a while.
Lastly, I'd like to thank Brett and Leslie for holding the August raffle for us. Brett does some amazing artwork. We hope that everyone who can will buy a ticket or two to help out and try to win some custom artwork. Thank you to those who have bought tickets already, we greatly appreciate your support!
Thanks again everyone! Night!