Saturday, June 12, 2010

school's out for summer!

Aidan's last day of preschool for this year was June 4th. They had a little party at school for the kids. Two of the little boys from Aidan's class graduated to kindergarten. Like last year, Aidan's teacher, Ms. Melanie, gave us a CD with pictures that they had taken during the school year, so I wanted to share those with you all.

The EC class that Aidan is in is going to be moving to a different school, but he will have the same teacher next year since he still has another year of preschool. Evan will also be starting preschool with Aidan in the fall, but he will be in a different classroom.

We met this last week with the surgeon who did Aidan's g-tube and trach to discuss doing a baclofen pump trial. The surgeon was concerned that there isn't enough room in Aidan's abdomen right now for the pump since it is pretty big. He is going to talk with our neurologist and our physiatrist to get their input. I am hoping that we will be able to do the trial and see if there is any improvement in Aidan's tone. I don't know if it will help with the posturing that he is doing a lot of these days.

Next week is our visit with the neurologist. We're going to be going over the results of Aidan's most recent MRI and EEG, and I plan to talk to him about putting Aidan on a ketogenic diet to see if that will help control his seizures. Dr. C uses this diet for a lot of his patients and he has done a lot of research on it, so I trust him.

Well, that is all that is going on here. No summer school or therapies other than speech and Vital Stim, which we hope to start soon, once we get a barium swallow study done.

Please continue to keep Aidan in your prayers. I still have hope that there is a miracle out there and Aidan continue to improve and will one day be healed.


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